I was falling asleep at work and having trouble staying awake for the 7 mile drive home from work. Doctor sent me to a Pulmonologist who ordered a sleep study. I was diagnosed with severe sleep apnea and prescribed a ResMed machine. I was still in the adjustment period (2 months) and had a major stroke resulting in right side paralysis. The neurologist said I had 3 major risk factors for stroke 1 - the apnea, 2 - HRT, and 3 - smoking.
I spent the next year relearning how to use my hand and how to walk unassisted. I gained 50 lbs in that year.
As I was exercising to regain my leg, I experienced more and more pain, so they replaced my knee. I gained 20 more pounds.
Now, I am fairly functional, I can sew again (!) and walk short distances unassisted (by a walker). Am working on dieting (have lost 30lbs!). Haven’t had a cigarette since the morning of the stroke. I am afraid to NOT use my CPAP.
Over the almost 6 years I’ve had my machine, it periodically quits humidifying. They have replaced the tank twice and the humidifier side of the machine twice. A year ago, at my annual pulmonology follow-up, the doctor told me that my machine was pretty outdated and I should get a new machine when I complained about the humidifier. At that time it was 5 months short of owning it for 5 years, so the provider wouldn’t replace it. They replaced the humidifier side of the machine. It worked for about 6 months, then periodically would quit working. Some nights, most of the water was gone, some nights none of the water was gone. Now, it quits about every night.
At this years’ annual follow-up, the doctor submitted a new scrip (sent it to my provider) for a new machine. I called my provider, they said once it had made its way through the system, they’d contact me. After a month when they hadn’t, I called them again, they said come to their local office. I did the next day. They told me they couldn’t find a record of the scrip and besides, only had a pulmonology tech on Tuesdays, come back on Tuesday. I suggested they could have all the paperwork ready since they’d have a week to get it done and stood there until she “found” the scrip and told me stuff was missing, she’d contact the doctor.
I went in the next Tuesday and the woman had to “find” the scrip all over again. The tech plugged in the machine and it heated up, so said the machine is fine, they won’t replace it. I told her that it quits working most nights, she replied, “But it’s working fine”.
The lack of humidity is what’s waking me up at night, now. In 3 weeks, this machine will be 6 years old with me. Is this the way I should expect them to provide service? What are your experiences? I don’t know what to do.