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#185

Hi, my name is Marie, I’ve been on CPAP for some time now and having one problem after the other. I’m getting a lot of air in my stomach and waking up bloated and in pain when up. My mask is leaking much of the time and I sometimes wake up with my lower lip out of the full mask making my mouth dry. I sleep as bad with it as without it only the events are down from 53 an hour to 12 or less. That may be more due to being awake so much that I stay off my back, which is when I stop breathing. Also, I get air in my mouth often when still awake and it is coming in thru the nose…no other way. But most of the time it does not start to leak till I go to sleep. My mouth changes as it relaxes into sleep. If I sleep with my teeth in, it is often better, but my lower gum gets very sore due to the pressure on it from the straps being pulled up. I think I have too many things wrong to get any help.


#186

Hi Marie, can you please tell me what pressure setting ( in positive airway pressure (PAP)
was prescribed for you? Thanks!


#187

Hi Autumn. That has to be very frustrating.

A couple things come to mind.

First, some of the side effects of ropinirole include insomnia, agitation and anxiety.

Also, what type of mask are you using? Wonder if there are any leaks?


#188

What type of mask do you have, and what is your pressure?


#189

Peggy H. 70 year old female. I have severe sleep apnea. I have been using therapy for over 4 years.I am negligent about cleaning my machine therefore I get illnesses. I need motivation and education.

Thank you!


#190


#191

My Cpap machine had green mold growing inside plastic window where I cud not clean it. It made me very sick until I discovered it! Doctor ordered new machine. Hoping for more success and less problems!!


#192

I was diagnosed with obstructive sleep apnea about two or three weeks ago and started CPAP treatment last Tuesday. I am having a very difficult time going to sleep with the mask on. I have a full mask due to my sinus problems. I am getting very little sleep. Any tips or suggestions would be helpful
Right now sleep is almost impossible to get


#193

@jsimms435 Complete relaxation and concentrating on breathing with the machine (and not against it) may be helpful. Imagine the pressure filling the back of your throat, keeping the airway open and not obstructive. Relax. Relax. Relax. Sometimes this exercise coupled with soundscape-type music can be the perfect tonic to lull you to sleep using the machine.


#194

Hi ! My name is Kathy,

I stumbled across this site and saw that there is a forum. What wonderful place to be. I was diagnosed in 2016 with moderate sleep apnea. I was surprised to say the least when I completed my sleep study and found that I stop breathing 20x a hour. I am currently using the cpap but to be honest it hasn’t been the relief I hoped for.

Sleep is so taken for granted until you lose it…


#195

Welcome Kathy!

Do you notice any difference with CPAP?

Are you having any issues with the mask or pressure?


#196

I am a Respiratory Therapist at a DME
I sleep well!
GREAT! And vital!


#197

I am looking for tips for my cpap patients!


#198

@MotherT things got much better after the first 10 days. I am falling asleep now without much of a problem. Thanks


#199

Hello! I am happy to have found this forum. I am here because I was looking for advice on how to find a cpap mask that will work for me and stumbled onto this. I attempted using a cpap 4 years ago and was not able to find anyone locally who could help me tolerate it. I gave up and eventually had a TIA and also learned that at some point I have had a silent stroke. I am afraid not to use a cpap now so I found a new sleep doc, a new equipment supplier, and am trying again. It is not going particularly well from my perspective but I am compliant for well over a month now. Thanks for reading and being in this forum. Now, if I can just figure out how to get this mask to stay sealed so I can sleep…Ha! My current routine is to read until I am sleepy with the mask on and try to fall asleep. Sleep is not easy, nor restorative, but if I keep trying with this machine surely it will improve.


#200

Welcome, @Beverly :slight_smile:


#201

Thank you! It’s good to meet you


#202

Hi All, Des here, I’ve been using a CPAP machine since February and I’m hoping to reach out to other people who use a CPAP machine and who are coping with Sleep Apnea in general…looking forward to hearing from you all…

rgds
Des


#203

Hi Des,

I don’t use CPAP myself, but have been doing sleep studies for 12 yrs.

Welcome to the forum.


#204

Now getting much better. I Have CLL (Chronic Lymphatic Leukemia)
I contracted pneumonia and was hospitalized for 9 days. It was there that they discovered that I had sleep Apnea .
I’m 66 years old and have always been a restless sleeper. Since I’m now on Medicare ; there was a lot of requirements that needed to be met so that I could get my CPAP for free. 2 sleep studies; a respiratory test and paperwork filled out by my Doc. The whole process took 3 1/2 months. I have AARP supplemental insurance so the bottom line is I paid nothing for the CPAP machine ( Philips Dreamsleeper ) which is supposed to be top of the line. I’ve been using it for a week now. It took some getting used to but I sleep Sooooo much better ! I’m down to an average AHI of under under 2. Total Hypopneas range from 6 to 10.
I was scoring 75 and more during my sleep test. Good luck and don’t be afraid as I was .